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Anyone had radiation on their central nervous system?
Lung Cancer | Last Active: Nov 25, 2025 | Replies (10)Comment receiving replies
Do you have to go through radiation to treat the cancer in your spine? I can’t imagine that this is your only option, have you tried to get another opinion to be sure because otherwise you could ask for trials that might help you without causing too much damage. I sincerely hope that you can get more information about this and perhaps more options, please don’t give up on hope and I will pray for you to be well soon.
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@frouke @lls8000 @mamajite Sorry, I should have added more to my post. This is adenocarcinoma spread to my spinal fluid. (It's also about everywhere else in my body, just not causing problems) The radiation will be on my spine and brain. I have the eGFR mutation and was recently on Tagriso. They switched me to a new treatment of Lazertinib and amivantamab a month ago and unfortunately symptoms have progressed although very slowly. I lost the last bit of control of my face that I still had. I'm thinking radiation will be in my near future. My local oncologist called it a last ditch effort. It's not scheduled yet, I just expect it will be soon since I lost some ground since starting the new treatment. I also have an oncologist at Mayo where I go for scans. He's the optimist and I still do my scans at mayo because I don't want to lose him as a doctor.