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Tips for Loved One starting Radiation Therapy

Head & Neck Cancer | Last Active: Nov 28, 2025 | Replies (13)

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Profile picture for ruehoudon @ruehoudon

@bttrfly I understand. I can't account for why your sister's radiation oncologist has left her so unprepared as she begins treatment, but what I can suggest is that she or you requests an appointment with her oncologist's physican's assistant (or nurse practitioner, whatever resources the office has) so that you ask questions, cover the bases, primarily about side effects and how best to prevent or mitigate them. Be sure you ask about things like mucositis, potential long-term effects of radiation to the throat (lymphedema, etc.), setting you up with speech pathology for swallowing exercises and monitoring and anything you can think of. I'm convinced that I did so well through treatment because I spent 90 minutes with the PA going over every detail and "worst that can happen" scenario, and because I determined to be 100% compliant with all instructions. But you have to have comprehensive information and instuctions before you can determine how to be compliant. Sending all warmth and good wishes to you and your sister.

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Replies to "@bttrfly I understand. I can't account for why your sister's radiation oncologist has left her so..."

@ruehoudon
Thanks so much. I think your suggestion to meet with the oncologist PA is an excellent idea. Unfortunately, I don't get the impression that is even an option. I will ask her about the possibility of speaking with a PA, if there is one. I am not able to be with my sister in person but her son is going to every treatment session and appointment with her. I spoke with my sister today, Nov. 25. She has one more treatment this week and 5 next week to complete the RT treatments.
She said her healthcare team has not given her any information on preventatives, diet or other. I had already sent her some honey in a care package and shared information re honey as a preventative. The doctor on call today said he would prescribe an RX for thrush (she reported non painful blisters in her throat). Thanks again.