← Return to Anyone taken Evenity (romosozumab) for Osteoporosis?

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During chemo and radiation for invasive ductal breast cancer I ceased my Prolia injections. I had osteoporosis before the cancer diagnosis. I had also begun letrozol, for a 5 1/2 year period. I waited 2 years until my next Dexascan (before continuing Prolia) that showed my bone density in many places to be -4. My doctor recommended Evenity. I returned to the Prolia until I had time to learn about Evenity. I went to the MCV/VCU head of bone health and discussed it with her. She said if you have had radiation of any kind, Evenity could cause bone cancer. I was glad I took the time to investigate it. I am still on Prolia and Bone-Up and Ultra Bone-UP, and Vital Proteins Bonine Collagen Peptides. Seven years later, and my last Dexascan showed I had improved to osteopenia in most areas. There are few weak spots at -1, -2.
While I was undergoing treatment for breast cancer I investigated Prolia. I found a study in University of South Carolina about Prolia and breast cancer. They claimed it caused mice to get breast cancer. I did get breast cancer after several years of taking Prolia. Prolia is manufactured by Amgen. When I received my Estrogen Positive Breast Cancer Chemo, it was also made by Amgen. One day after my Chemo, I would return to get a Neulasta injection to improve my blood count. That was also made by Amgen, and in the fine print it said - May cause tumor growth. !! I really had no choice. It was the only one I had if I wanted to live. But the fact that all three products were manufactured by Amgen was cause for concern. I am now 9 years out, and truly grateful for my life and time to see my family, my children and grandchildren, and even a great grandchild!

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Replies to "During chemo and radiation for invasive ductal breast cancer I ceased my Prolia injections. I had..."

@dbivins wow! Glad you are doing well now!
These meds do need to have more info provided by “ real “ situations. I.e, ongoing research not done by the manufacturer!
Enjoy those generations of kids!

@dbivins
What drug are you on now for osteoporosis? Or if and how did you go off Prolia?