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Diagnosed with sarcoma? Let's share
Sarcoma | Last Active: May 7 8:29am | Replies (1065)Comment receiving replies
@hjemma
Hi I've had MRI and ultrasound. I went to a regular surgeon and an orthopedic surgeon each said they did not want to touch it and sent me to Moffit cancer center in Tampa. That Dr looked at pics and told me a soft tissue sarcoma and to have surgery. Said it was probably on a nerve and that causing pain. Said it would not go away He is Also the dr who said probably not cancer because it hurts. Did not offer to do a biopsy .. and sadly I didn't think or ask about a biopsy. He did say they would test it . That's as far as I've gotten Thank you for response.. and no chest or other X-rays or scans on body
Replies to "@hjemma Hi I've had MRI and ultrasound. I went to a regular surgeon and an orthopedic..."
@carolak
Prayers for you. I guess it was my Family Med doc who ordered the US w/biopsy because I asked. I don't know if Ortho or Oncology would have started there or not. Maybe yours is small enough and away from other structures that you don't need to shrink it first. Keep asking the questions, like, how often do you see this?
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@carolak
Hi Carolak....I'm not sure what the Dr at Moffett's specialty is, but to assume things without testing isn't very reassuring. A biopsy will provide detailed information about what your growth actually is, and can provide needed guidance on a treatment plan. By doing surgery first without any other knowledge of what you're dealing with, it may cause you to miss important treatment steps. Is the Moffett Dr a sarcoma specialist, or sarcoma surgeon? He should have this specialty to actually help you. If not, you should go to a sarcoma specialist or clinic for better guidance. As you are a breast cancer survivor, you need all the details you can get on this new growth. Wishing you well in your journey and the time ahead.