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DiscussionHow does your pain come back when decreasing dosage?
Polymyalgia Rheumatica (PMR) | Last Active: 5 days ago | Replies (57)Comment receiving replies
Replies to "@dadcue Thank you very much for taking the time to explain. I wish you well."
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@mezack25
No problem ... It was very difficult for me to taper off Prednisone. It was impossible to taper off prednisone until Actemra was tried.
The way prednisone suppressed my adrenal function was very complicated. I'm just beginning to understand everything that long term prednisone did to me. I needed prednisone when I had all the pain but I'm much better than I was. I had so many relapses but I don't think it was only PMR that caused all the relapses.
After Actemra controlled PMR, it still took a long time to recover from being treated with prednisone.