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Any Adhesive Arachnoiditis members here?

Spine Health | Last Active: Jun 11, 2025 | Replies (134)

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Profile picture for Jon Arachnoiditis SUCKS @gsr4863

@sophie46 Hi Sophie, I too had my Dura torn during surgery. Then had 3 failed blood patches that just gumed up the base of my spine nerve bundle. It's been hell. I hope and pray that someday soon we can get relief. I'm sorry to hear you have AA. I feel Nobody understands my pain

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Replies to "@sophie46 Hi Sophie, I too had my Dura torn during surgery. Then had 3 failed blood..."

@gsr4863 When I had the spinal fluid leak they drained the fluid from me by setting up a drip, which removed the extra fluid from me. I'm unable to think of a clear way of saying this. It worked. I am sorry that your pain is not being addressed. This is cruel.