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Colleen Young, Connect Director avatar

Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 22 hours ago | Replies (1087)

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@hjemma
Hi thank you for the response!
Yes it does hurt on and off. Sometimes intense and other times not so much !
What is a synovial sarcoma ?
Could you feel a nodule or lump or anything ? And I think I'm understanding you have not had any surgery at this point ?
Appreciate your response

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Replies to "@hjemma Hi thank you for the response! Yes it does hurt on and off. Sometimes intense..."

@carolak
The biopsy determined the type of soft tissue tumor -- synovial. It is rare. It presented as a small, now marble size, lump in my thigh. It's firm like a gum drop. It sits near or on a nerve. Have yours checked more. Since it is rare, your primary doctor may not recognize it.
I will have surgery after the 15 Proton Beam treatments.
I can walk and work.
Bumping the tumor hurts the most, but it can be a sharp pain just lying in bed.