← Return to Has anyone been diagnosed with pseudopheochromocytoma

Discussion
Comment receiving replies
Profile picture for lisa11 @lisa11

@help4nurse I'm sorry you're having to deal with this and know how stressful this would be. I was going to be referred to an endocrinologist in Madison. He said, the only positive way to diagnose it is to test blood during an attack. Which means being off all medicines and being in a hospital. In other words, that's not going to happen. So pseudopheo is a diagnosis of exclusion. Many doctors aren't familiar with it. I keep referencing Dr. Samuel Mann as his articles explain it and hopefully your doctor would recognize his work as legitimate. He recommends some combination of alpha, beta blockers, antidepressant, and acknowledging psychological components. Many people think there is no psychological component. It's complicated and beyond what I understand. For some it's just their coping style that sends nervous system into overdrive. I've had many unexplained physical problems related to stress since mid 30's. This one came on when I was 67. Take care.

Jump to this post


Replies to "@help4nurse I'm sorry you're having to deal with this and know how stressful this would be...."

@lisa11 Thanks for the reply, I am now 69 with this recurrence. I am wondering if this was triggered by long covid x 4 years (unvaxxed). I heard of Dr. Mann before. Are there articles that he specifically talks about pseudo pheo? I also have had occasional svt episodes since 2021, which was severe during active covid. I wonder if there is a genetic component in this misery. I need something I can share with my pcp. The endocrinologist I saw back in 2013 is no longer in practice. Docs today just label everything anxiety. But when I have a bad episode it literally feels like I'm not gonna make it and like someone shot my chest full of adrenaline.