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What's your life like after Brain surgery?

Brain Tumor | Last Active: May 6, 2021 | Replies (53)

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@mrector

I am so sorry you are going through this. I had a craniotomy on Aug 28, 2018. What does your incision site feel like when you touch it? Mine feels very sunk in. I was wondering if it could be collapsing. I go back to my neurosurgeon in March for my 6 months recheck. I still have 15% of the meningeoma left because they couldn't risk removing all of it. All of this is still new to me and just trying to figure out what is "normal" after having this surgery
Thank you,
Mandy

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Replies to "I am so sorry you are going through this. I had a craniotomy on Aug 28,..."

Your post made me remember two things my wife's neuro-oncologist said to us after her craniotomy. In the waiting room we asked 'when will she be back to normal'. He said "I suggest you think of this not as a new normal, rather a new different". He also said "It's important to remember that every patient, brain, and tumor are unique so your wife and mom's post-surgery journey will also be unique."

Not anything earth-shaking, but his words did help us move forward with a better understanding of what might, and did, lay ahead.

Strength, courage, and peace!