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What's your life like after Brain surgery?
Brain Tumor | Last Active: May 6, 2021 | Replies (53)Comment receiving replies
I had 2 Brain tumors removed in 2005. One was the size of a softball and the other was like a golf ball. All went well till 2016. For the last 2 years I can’t stand without swaying, dizzy always and totally fatigued. Went back to the neurologist and was told it was from scar tissue. There is nothing that can be done to help me he said.
Replies to "I had 2 Brain tumors removed in 2005. One was the size of a softball and..."
Hello @tiffanygal Nice to e-meet you here on Mayo Connect. I am sorry to read of your healthcare journey. I wish I had some words of wisdom for you in this situation, but all I can say, based on my wife's journey, is never lose hope and keep watching the newest discoveries in neuro-oncology! This area of medicine and science is changing almost constantly and one never knows when a new discovery or treatment might be helpful. It was amazing to us how much treatments changed in the years of my wife's journey.
When she was diagnosed there was no idea of gene therapies, etc.
Strength, courage, and peace!
@tiffanygal that is such a harsh thing to hear -- that nothing can be done. Have you considered a second opinion or getting input from a multidisciplinary team? I'm not a medical professional, but I wonder if you could work with physical medicine and rehabilitation (physiatrists) and/or physical therapists to help with the swaying, balance and dizziness.
I had brain surgery 2 yrs ago - successfully removed a benign 3 cm meningioma.
Sounds great
but I have balance problems, severe depression, ostopenia & other stuff. In reaearching all of these problems,
I've found out that the anti- seisure med (Kepra) causes a lot of these problems! .No doctor warned me of this.. So
my quality of life after surgery has been disappointing
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I am sorry to hear that. I wish I could help in some way but I am so new to this