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Chris Gautier, Volunteer Mentor avatar

Which Seizure Trigger Is Your Hardest Battle?

Epilepsy & Seizures | Last Active: Nov 25 8:39am | Replies (22)

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@randallshields56
Hi Randy!
In the Xcopri discussion, you mentioned that you've learned to recognize when your seizures are coming, sharing some strategies to avoid them.
Would you mind sharing more about that here in this discussion? What do you think your seizure triggers are, and which ones do you still find challenging to manage?
Thank you!
Chris

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Replies to "@randallshields56 Hi Randy! In the Xcopri discussion, you mentioned that you've learned to recognize when your..."

@santosha the hardest ones are when i am under fire with questions that my mind cant spit out the answer fast enough for the examiner or doctor. i have to think what i want to say, say it in my mind then give them an answer, the correct one, not an answer just to get them off that question. that makes things worse so now i let them know in advance if able to be very patient please. light also sets off the seizures, different lightings if dimmed help. strobe lights are totally out of the question, i leave. lastly triggers can be many things, someone angry already for whatever reason brings that to the table, now yu have stress b4 hand to much and you can begin shut down mode.

@santosha
Thank you. too many things at nec to sort thru are tuff, the mind starts to mix up the input and you cant seem to settle down, to quiet the madness. trigger function i realize i have too much on my plate. Rest your mind while you think outside the box a sec, best if you can motion someone for a paper and pen or have them handy with friend family member, someone. scratch key words to help you think. this also slows the mind to spell words slower to give the mind time to settle, hopefully that works. with family i raise my hand, i finger out to say time out needed and they can help with messages or whoever needs to be told a small time out please. too much info to move through, that and you really need a good nights rest first , don't fret about your appointment.

@santosha time out time need to get away from the computer for a bit do something else. Ty