In addition to lack of energy which is so bad that if I don't take adderall in the mornings I won't get anything done around the house and tend to want to lay around, I have recall problems and problems committing newly learned things to memory. Someone once asked me if I had any brothers and sisters and I answered no. I believed, I didn't because at that moment because I couldn't remember. A few minutes later, I remembers that I did have two brothers and one sister. Recall is also a problem, sometimes I can't find the right word and say the wrong word instead or get the facts word. For instance I was telling my son the story about God when he walked on water and offered his hand to one of his disciples and said that if he had faith he too could walk on water. Instead I said to my son, when Jesus was walking on water he offered his hand to the disciple offered him his hand to get into his car.

I actually had my tumor removed, followed by radiation therapy and was part of a drug study at Mayo Clinic which is why I came back to the site. I love Mayo and received GREAT care. (side note - one of the nicest thing that my doctor did when I was first diagnosed with acromegaly was to to give me a hug and recognize that I've been through a lot of changes with my body. Dr. Charles Abboud - I'll never forget his kindness.)

I've also had psych evaluations as far back as 2005 at which time the doctor said it my problems would not get worse. But fast forward to 2017 and my problems are much worse. I can no longer hold the type of jobs I had and only work part time. My life style and quality of life has been greatly impacted. At this point I want to believe things with my memory won't get worse and I certainly hope they don't. I have a 17 year old son that needs me. I'm afraid for the future to tell you the truth.

I also have memory problems, especially with recall and learning new things. I attended college two years after my cancer treatments and had difficulties with learning. My memory has also gotten worse over time. I had to come home from college in the spring of 2004 due to chronic fatigue and memory problems.

I have to take things at a slow pace and try not to overdo myself, which is easier said than done. Some of the doctors I've seen have said that the problems I'm having are more so from the radiation than the chemotherapy. I have to stay focused on one day at a time.

@1997bcs

I think starting a thread about the late effects of chemo/radiation would be beneficial, along with ways to cope.