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CAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 1 day ago | Replies (351)Comment receiving replies
@bangobingo Welcome to Mayo Connect, along with a congratulations on your CAR-T cell therapy! There are so many wonderfully positive stories from lymphoma patients receiving this treatment and yours is another! So thank you for sharing with the group! While the early days can be uncomfortable they are quickly forgotten when life returns to a level of certainty and normalcy again. Three months and you are now back up to speed! That’s fantastic. Sticking around to see your granddaughters get married and to see some cute little great grand-babies are strong motivators!
How frequently do you return for follow-ups with your oncologist?
Replies to "@bangobingo Welcome to Mayo Connect, along with a congratulations on your CAR-T cell therapy! There are..."
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@loribmt
HELLO LORI ! As you may recall , I HAVE GONE FROM PV TO MF NOW !
Took HU ! JAKAFIE AND NOW ON 150 mgs of
OJJAARA!! Almost two months with some interruptions because of acute side effects! JUST HAD FOLLOW UP ON NOV
NOV 13th 2025 ! Still anemic! Very low plates and low white blood cells !
Will continue to take OJJAARA UNTIL NEXT APPOINTMENT IN DEC 12th ! I do not SEE MUCH ABOUT OJJAARA FOR MYELOFIBROSIS!!
Read quite a bit about
CAR T CELL BUT DO NOT KNOW IF ANYONE WITH MF HAS TRIED CART CELL
PER MY HEM/onc !! My prognosis is DISMAL !! Do you have any information whether MAYO CLINICS ARE USING CAR T CELL TO TREAT MF ?
Transfusions are difficult because my spleen is HUGE !! I am aware that if anyone can get latest info!! That would be you !! Awesome LADY !! No rush on my part
HAVE A WONDERFUL THANKS GIVING !!
Thank you for your support to all of us who are part of this community!! With gratitude HANYA