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Diagnosed with sarcoma? Let's share
Sarcoma | Last Active: 1 day ago | Replies (1011)Comment receiving replies
Hi
I was told I have soft tissue sarcoma on thigh. Drs said the tumor size of small quarter is sitting on a nerve and causing pain on and off. He also said not to worry it is cancer because cancer usually does not hurt !!! Does this sound reasonable ? I have not had biopsy he just wants to do surgery . And how is that surgery done ?
Thanks
Carolak
Replies to "Hi I was told I have soft tissue sarcoma on thigh. Drs said the tumor size..."
@carolak please send sarcoma specialist at a sarcoma center ( one that handles more than 200 sarcoma cases per year). A good one in ohio is Cleveland Clinic in Cleveland bor the James center in Columbus (ohio state). Good luck, at getting some competent advice
@carolak
My doctor started with biopsy to determine that I have a malignant synovial sarcoma in my thigh. Cancer does hurt, at least for me on and off. I also had MRI and a CT scan of lungs to determine if metastatic. Treatment plan is Proton Beam 15 times, then surgery.
While not all sarcomas are malignant, you can't know without a biopsy. Get to a sarcoma center rather than doing surgery before even a biopsy. Best wishes.
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@carolak
Hello Carolak.....I'm not sure how your Dr would know you have soft tissue sarcoma, or not, without a biopsy...."because cancer usually doesn't hurt"??? As you've described it that way, how would you know? A biopsy, provided you have the time and interest, would be crucial to any treatment decision. While surgery is the preferred method to treat early stage resectable tumors, you could benefit from knowing the type of sarcoma, it's stage, and other important information that can be derived from a biopsy. While your Dr may like to cut, you may be wise to pursue a biopsy first.