← Return to Spinal Cord Stimulator Removal
DiscussionSpinal Cord Stimulator Removal
Chronic Pain | Last Active: Nov 22 8:09am | Replies (174)Comment receiving replies
@rivermaya34
@gregda Hey there, friend! That's a really great question - since I am not a Dr, I don't want to promise you something that doesn't necessarily pan out on your behalf. From what I've heard (and from personal experience), it is very safe. The only time I ever had a problem with it was during the trial and that is simply because a lead slightly moved enough to cause really bad symptoms. However, I was on the phone with my BS rep at the time, and he was able to meet me in person immediately to get it fixed. Simple as that. The permanent one has never moved, not even an inkling. In a sorta half answer to your question, I do not believe it will harm you or cause any further damage in regards to your fusion. However, that being said, I would either call your Dr and/or Boston Scientific directly and ask them if there are any contraindications. They would be able to answer you for certain and guide you into next steps. In answer to your second question - I can definitely relate, and I am SO sorry - there are several things I could suggest (with your Dr's permission, obviously): 1) Medications = so far, the ones that have really worked for me are Gabapentin, Lamotrigine (regular; NOT extended release - but, it gave me a rash, therefore, I am ineligible to take it) and Levetiracetam 750mg ER (250mg turned me into a zombie and didn't work, personally). With Gaba, though, I am trying very hard to get off of it bc of the withdrawal / dependency factor (not addiction; I mean lifelong, in general) and bc I want to solely rely on my stimulator(s). The Gaba/Levet combo has been decent, along with Gaba/Lamot combo. 2) Taping techniques = Idk if you have a PT/OT or not, but mine used to tape me regularly (holds for about 7-10 days) and it was instant relief. Wonderful. But, I'm allergic to adhesives so it wasn't worth it long-term. 3) Heat = very calming for me (cold = the devil lol!); seems to take off the edge 4) Orthoses = specifically, I would recommend the SaeboGlove (I have one and love it); also, there is the option to have braces custom made (I also have a pair and works wonders! Not inhibiting in the least) Your PPC/neurologist would have to send in a referral, but it's definitely an option! 5) Tubigrip = I love this stuff! It is really helpful if you have any skin sensitivities. Takes the stress off of being in public or doing daily activities. 6) Scraping = I didn't particularly like this bc of hard-to-touch skin, but it works wonders for others. 7) Tuning fork = believe it or not, this was one of my favorites. Used it at OT all the time and it seemed to ease the pain/sensitivity enough to function. 8) Mind over matter = don't hate me for this one, please - just, hear me out. Sometimes, giving the placebo affect to yourself really works. Telling your mind to tell your body to "do" or "feel" can actually work. (I'd suggest watching "Lorenzo's Oil" if you haven't already) 9) For motor nerves, there are adaptable tools you can use; some you can make yourself at home (e.g. therapy ball with a pen stuck thru it for writing) 10) Use different muscle groups to accomplish tasks = e.g. I use my forearms vs my hands for a lot of things, which strengthens me + offsets the deficits I have. Get creative! 11) Massage = tough if you're sensitive, but really does wonders! 12) Last suggestion = chiropractic care. I was a skeptic until I wasn't anymore. I truly believe in this bc it can greatly decrease your symptoms, which helps your mind to heal enough to where it can believe that "all things are possible" per se. I hope some of this can be helpful to you. In the meantime, I'll keep thinking and shoot any other suggestions I have your way! Stay positive, my friend. Remember, this does not define you - rather, look at it as a gift! I believe you and many others who deal with such challenges have been gifted this "burden" bc we have been deemed strong enough to handle it, which in turn, helps others. This way, we are able to keep fresh perspectives and "give back" to our communities and relate to others who are struggling, offering true hope and empathy. Sending prayers your way - and, remember to look up; there are always rainbows in the sky! 🙂
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@rivermaya34 : TKS.... I'll review some of your ideas on >. pain meds I've not tried, and > the Tuning fork (WHO administers this ??)..... I'm not keen on Chiros at least in St Pete, they mean well but in my past very unscientific: eg: neve did a Xray/MRI... and now w/ lumbar and 20-yr old cervical fusion, won't trust them to adjust back as risk to pinch more nerves toooo high. Still think, need to focus on combo of Motor and Sensor nerves... Stay 'well' !!