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Replies to "Hello @lexi10, Welcome to Connect. It must be heartbreaking to watch your child struggle through pain!..."
I have had CPRS for 2 1/2 years with pain every day. This occured after knee replacement. I was in such pain the first year that I could not eat. I lived on Boost milkshakes and Oxycodone and my weight dropped to 100 lbs. I had spinal blocks which did not help at all. I went to neurologist at Vanderbilt and the only thing he offered was a higher dosage of Cymbalta which I did not want to do. I currently take 150 mg of Lyrica, 60 mg of Cymbalta and Oxycodone as needed. I am scheduled to start Ketamine infusions (200 mg each day for 2 weeks) next Monday. I am excited about this as I know it will help, I just don't know if it will last months, years, or lifetime.
I am sorry to say that someone who has been diagnosed with CRPS, a second injury can cause it to worsen. My initial injuy was my ankle and I had CRPS symptons but was not diagnosed until a hip fracture made the ankle pain much worse and my leg turned blue and cold. It has since spread to other areas. Getting diagnosed and treated as quickly as possible is key. You need to take your daughter to a doctor that knows and works with CRPS patients. My primary did not know what it was until I got treated by a pain doctor who did--this was my 3rd pain doctor. Please keep us posted to see if we can help in any way! Prayers with you and your daughter
Did your doctor let you know that the two weeks are the "loading up" of ketamine. Following that you will probably be scheduled every 4 to 5 weeks for 1 to 2 days. Good luck!!
She is only 10 and loves gymnastics! About 4 months ago she hit her foot on a wall then could not bear weight. It soon became cold, blue and pulseless. After many er visits and hospital stay they dx her with CRPS. Her foot started working again and back to gymnastics! Now she fell off the monkey bars and her arm is swollen and any movement or touch hurts.xrays are clear.