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@suziq64
I also found this site looking for help or support. I first experienced these type of symptoms in October 2012. I had testing with negative results, did a lot of research but eventually resigned myself to it. I was diagnosed with something called hyper beta-adrenergic sensitivity syndrome by an endocrinologist. I was never diagnosed with pseudopheo but felt that was what I had. I live in an area without specialists that would be able to diagnose something like that. Eventually over a couple of years with beta blocker and a benzo things got better and stopped for quite a while. Then came covid in October 2021 and I had same symptoms, only worse, along with others and was diagnosed with long covid. I have dealt with it on and off since then and recently had a bad episode. It has dawned on me now with a severe episode that the problems I have had the last 4 years is a reactivation & has attacked my nervous system. Does anyone know where to find a doctor knowledgable about this type of treatment and condition? What medicines are others taking? It's really stressful to try to think about your health constantly.

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Replies to "@suziq64 I also found this site looking for help or support. I first experienced these type..."

@help4nurse I'm sorry you're having to deal with this and know how stressful this would be. I was going to be referred to an endocrinologist in Madison. He said, the only positive way to diagnose it is to test blood during an attack. Which means being off all medicines and being in a hospital. In other words, that's not going to happen. So pseudopheo is a diagnosis of exclusion. Many doctors aren't familiar with it. I keep referencing Dr. Samuel Mann as his articles explain it and hopefully your doctor would recognize his work as legitimate. He recommends some combination of alpha, beta blockers, antidepressant, and acknowledging psychological components. Many people think there is no psychological component. It's complicated and beyond what I understand. For some it's just their coping style that sends nervous system into overdrive. I've had many unexplained physical problems related to stress since mid 30's. This one came on when I was 67. Take care.