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Ill have to learn as I go, with ckd for many years now, i am still avoiding dialisis but Im anxious to hear how others have managed along the way and what they have done to avoid problems.
Bonnie.

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Replies to "Ill have to learn as I go, with ckd for many years now, i am still..."

Hello @bon123 and welcome to Mayo Connect. I see that you are looking to meet others who have been dealing with CKD and perhaps have used dialysis. Here are some news feeds and discussion groups that might be of interest to you:
--My journey with diabetes - CKD meet cehunt
https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/my-journey-with-diabetes-ckd-meet-cehunt57/
--A recipe for connection-conversation and living with ckd-meet kamama94
https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/a-recipe-for-connection-conversation-and-living-with-ckd-meet-kamama94/
And
--Dialysis Decisicion
https://connect.mayoclinic.org/discussion/dialysis-decision/
--Peritoneal Dialysis
https://connect.mayoclinic.org/discussion/peritoneal-dialysis-1/
As you read the posts, you will meet others who are dealing with CKD.

@ bon123. Welcome to Mayo Clinic Connect! You mentioned chronic kidney disease and you don’t want the full disease and dialysis. I found a support group that would be great for you.
https://connect.mayoclinic.org/group/chronic-kidney-disease/
I’m sure you will get all the answers you want!

@bon123 Let me add my welcome to Mayo Clinic Connect! I am one of the volunteer mentors for the Kidney Conditions and Chronic Kidney Disease support groups. I am on daily peritoneal dialysis, myself.

Let's connect some more over on one of those groups. You will have the chance to see several different discussions and hear what others have to say. See you over in those "kidney halls"!
Ginger