1. < Neuropathy
Profile picture for rachel44

How do you manage neuropathy and loss of balance and walking ability?

Posted by rachel44 @rachel44, May 18 2:02pm

How do you manage the situation when periferal neuropathy affects your balance and walking ability?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for jillb329
jillb329 | @jillb329 | 3 days ago
In reply to @chelsea2357 "@centre thanks for the good info. I had not thought of asking someone to help me..." + (show)
Profile picture for chelsea2357 @chelsea2357

@centre thanks for the good info. I had not thought of asking someone to help me with curbs. I also have balance issues with both legs with right leg worse. I try to do exercises every day, in bed, walk 30 minutes on treadmill or outside. I started having knee pain a few months ago and it was getting worse. I decided to do some exercises every other day. That worked. Now no pain in knee. I feel much better using a cane. Without it I would now be frightened to go up and down a curb. I use a cane to walk a short distance outside and have a walker in my car for longer time away from home. I believe the exercises I do help very much. I am wondering if anyone has symptoms as follows. If I lean my head over in the morning or where there is lots of light I have double vision. It subsides when I pick my head up. In the afternoon I do better. If I try to read small print I shortly have double vision and, when I walk too fast I also have double vision. And I cannot walk very fast. I have had this for more than a decade. I assume it is part of the nerve damage. When I told a neurologist about it he did not address it. Just went on talking about other things. Does any one know anything about these symptoms? Thanks for listening.

Jump to this post

@chelsea2357 I've just been diagnosed with macular degeneration. I had double vision for several months before I went to an eye doctor. It has nothing to do with PM, just age and genetics. Go to an eye doctor to be tested. The longer you wait, It takes longer to heal.

REPLY
Profile picture for highdesertdweller
highdesertdweller | @highdesertdweller | 1 day ago

John,

Can you please refer me to the Neuropathy Burning feet group? Or, someone else. I have seen that as a separate discussion, but can no longer find the link. thank you. Caleb

REPLY
1 reply
Profile picture for John, Volunteer Mentor
Mentor
John, Volunteer Mentor | @johnbishop | 1 day ago
In reply to @highdesertdweller "John, Can you please refer me to the Neuropathy Burning feet group? Or, someone else. I..." + (show)
Profile picture for highdesertdweller @highdesertdweller

John,

Can you please refer me to the Neuropathy Burning feet group? Or, someone else. I have seen that as a separate discussion, but can no longer find the link. thank you. Caleb

Jump to this post

@highdesertdweller - Here's one of the discussions about burning feet with neuropathy -
-- Small Fiber Neuropathy burning?: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-burning/

There are quite a few discussions on the burning feet symptoms. Here's a search of Connect using "burning feet and neuropathy" - https://connect.mayoclinic.org/search/discussions/.

REPLY
Profile picture for jenatsky
jenatsky | @jenatsky | 12 hours ago

I started using a single point cane. I can walk just fine but periodically due to my PN my right leg gives out and I fall. I haven’t hurt myself yet and a physiatrist visit on 11/18/25.

REPLY
1 reply
Profile picture for again
again | @again | 10 hours ago
In reply to @jenatsky "I started using a single point cane. I can walk just fine but periodically due to..." + (show)
Profile picture for jenatsky @jenatsky

I started using a single point cane. I can walk just fine but periodically due to my PN my right leg gives out and I fall. I haven’t hurt myself yet and a physiatrist visit on 11/18/25.

Jump to this post

@jenatsky
I had a problem for years of my legs suddenly giving out for no apparent reason. I literally fell a thousand times over several years, including several bad falls on my face on concrete. Turns out my liver was not making enough Glutathione, a substance that is involved in many bodily functions, including muscle strength. (Liver function can be damaged by hundreds of poisons in the environment, and by poor diet. Most people suffer some liver damage.). Doctors had no clue, even multiple neurologists. I did years of research on my own. The solution was to take milk thistle (inexpensive, available in powder or capsules). It fixed my liver, and now I only have to take a capsule 2-3 times a week to keep my Glutathione up. You can take Glutathione itself, but it is expensive, and you need to take quite a lot of it, regularly. Better to fix your liver with Milk Thistle and give it necessary nutrients with a good diet with lots of green veggies. Milk Thistle is safe with no negative side effects.

REPLY
View MoreView Less
Please sign in or register to post a reply.