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Celiac Artery Dissection (CAD)

Aortic Aneurysms | Last Active: Jan 3 9:16am | Replies (35)

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I picked the number 1 hospital in the country right in RI affiliated with the Brown University Norman Prince Spine Center. Unfortunately the same neurosurgeon is affiliated with the same hospital and University. I can’t find a decent doctor as the top ten are all affiliated with the hospital, the Brown University and Lifespan hospital as they all have admitting privileges at the top hospital group. My aneurysm is being monitored by my Cardiovascular surgeon who also is part of this group. BTW I had my gallbladder removed years ago so that’s not an issue.

I have an aortic artery aneurysm which has a tear in it and I’m on a blood thinner for my mechanical aortic heart valve so that’s not good. I also have a fractured spine at the L1 level which is the lowest vertebrae in the spine and I don’t know what to do anymore. Every doctor is connected because I went for the best so I’m working with my PCP as the hub. I hope my torn aneurysm doesn’t burst and my Coumadin keeps my blood from getting too thin as it would be easy for thin blood to pass through the tear. So I have one of the best neurosurgeons and one of the best cardiovascular surgeon and my blood pressure has been around 197/93 stage 2 hypertension so if you add the high pressure and the torn aneurysm together you have a chance to see how it could turn out. It could burst and it’s usually fatal or my mechanical heart valve could develop a clot and kill me or the clot can cause what they call “ brain bleed” then I would have a stroke from a blood clot in the brain. So it’s almost like I’m waiting to die from any one of these. I have many doctor appointments coming up so I hope they can get their act together and keep me alive. It’s scary. I contacted my cardiologist and he doubled up on my metropolol from 50 mg to 100 mg and I noticed that my BP has come down to elevated but stage 1 but today is the first time I take it. Wish me luck. Thanks

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Replies to "I picked the number 1 hospital in the country right in RI affiliated with the Brown..."

@andytheman
Hi Andy,
I am in the same state as you-little Rhody- but get my care in Boston. I’m fortunate enough to have surgeons in my family and amongst friends. I was put in touch with a surgical consultant when I was diagnosed with a 4.6 AATA. I also have a dissected celiac aneurysm, but too small to need care.
So- Dr Neel Sodha is in fact an excellent surgeon for aneurysms, but my consultant cautioned me about the support team locally. I’d already been directed to MGH by family. And I am a medical professional myself and well acquainted with RI hospital, Lifespan and Brown Medicine.
It’s only my opinion, but could I suggest MGH, Lahey, Tufts, Mayo or Cleveland as alternatives? The first three are very local and have a much greater volume than RIH ( or Miriam).
Hope all goes well for you! Dr Isselbacher is an excellent cardiologist and Dr Jassar an excellent surgeon at MGH.