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Tips for your first Mayo Clinic visit and tests/appt schedules
Visiting Mayo Clinic | Last Active: Aug 17, 2021 | Replies (38)Comment receiving replies
Hi @macjean and welcome to Mayo Clinic Connect. I am happy to help lay out a few different scenarios that may happen depending on the course of treatment/ second opinion status. Mayo is a destination medical center that handles complex care cases, however, not all cases require that amount of integration with other specialties. If you are seeking a second opinion, they will most likely set you up with only the specialty that you are seeking that second opinion in. I can with confidence tell you that they are one of the largest and most comprehensive neurological practices in the world and they are aware of autoimmune disorders that cause neuropathy like Sjogren's syndrome, lupus, rheumatoid arthritis, Guillain-Barre syndrome, chronic inflammatory demyelinating polyneuropathy and vasculitis. If you mention to your physician that you were told it could stem from an endocrine/autoimmune disorder, I am sure they would be happy to help with that and may suggest further testing or appts depending on your medical records. Off hand, I know that the neurologists Dr. Feyissa specializes in autoimmune related diseases and Dr. Freeman and Dr. Kennelly specialize in neuropathies.
Tell me, Macjean, did you mention this to the appointment specialist about it possibly stemming from an endocrine problem before her telling you they would only make the first appointment?
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Hi Amanda, thank you for your reply. No, I hadn't given that particular appointment specialist my background. The order of events didn't really warrant it. I had originally called to make an appointment. During that call I was asked to fax my medical records as they would need them to determine whether they would give me an appointment at all. I had several of my doctors fax the records and two days later someone from Mayo called. He made it sound like they were (at the time) waiting for the August calendar to become available to them, but that they would call me when that happened. Thinking this, I waited until the last week of July, thinking surely the calendar has been "released" by then, so I called the number that had called me. Then I spoke with the specialist that I referred to in my post. She informed me that I should have been told that I was on a waiting list, and that the August calendar had been out, but was currently full. I misunderstood what he was trying to say. That all being said, I asked her a few questions, but didn't get into my medical history.