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@vancouverislandhiker
I did read your profile Which told me about a number of things, but not your Gleason score or whether anything else was found in your biopsy. Most people don’t fill out any profile, but it really makes it easier to comment on their condition if they make a detailed one.
I suspect your Gleason score was seven, which is why your doctors don’t recommend ADT.
If you have another reoccurrence, that’s when they do it. I had surgery 3 1/2 years later, PSA rising, had radiation. They did give me ADT before the radiation, But only for the radiation. I went 2 1/2 years after that with no ADT. When it came back a 2nd time they put me on ADT.
Sounds similar to your case. Hopefully you don’t have a rise in PSA and can stay at that .0 “something” range.
My father died of Prostate cancer in 2008 at 88. He did get on Lupron after radiation And one day he said to me, “Lupron stopped working”. I did not really understand at that time what it was about since I didn’t have prostate cancer knowledge yet. He died in a lot of pain. As you said, if he was able to get the drugs we get, he would have lived a lot longer.
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@jeffmarc Yes, you are right . Befor surgery they called in 4+3 , but after surgery they called it 3+4 , with a slight 'recent' 2mm extrusion from the Prostate , that "looked" very recent , the Surgeon said. He said he took tissue and lymph samples from all over my Pelvic region and they all turned up negative for any cancer cells. After the operation the PSa went down from 4.4 PSA to about 0.07 or so , then over about 2.5 year climbed to 0.14 . At 0.14 the RO said to me "... we can wait for it to rise to 0.2 or 0.4 , but im positive these cells are in your pelvic region. Let go pedal to the metal and get rid of them ! , this is what I would do if it were me " So 22 sessions about 2.5 years ago and no ADT by his request. I am praying that my PSA does not rise from here. I was the caregiver for my father 25 to 28 years ago. Back-and-forth to appointments and back-and-forth to palliative care once his cancer got very bad. He always told me to get my PSA checked and to visit the doctor every year for sure to get a physical. Despite him being a chemical engineer, and very smart, he didn't like doctors too much and didn't see a need for them. On one of his overseas trips, it was mandatory that he get a physical for his company's medical. That's when they discovered he had prostate cancer. I can't remember exactly what his PSA was, but I know he had left it way too long. The odd thing is, he had absolutely no symptoms as well. He elected for the external BM radiation and then was put on ADT when that became available. I don't know what type of ADT he was on, but it only lasted for about a year or so, and there was no backup. This experience has left some scars with me. My GP says that I suffer from post traumatic stress and anxiety because of the situation. Yes, I was there the night he died. I can still smell the hospital, hear the machines working, and the clank of metal on the various pans around his bed. I covered his body with a light sheet after he passed away and said a prayer for him as he was a good father to me. Unfortunately, when I got prostate cancer, I did not act or deal with it effectively. I was a mess for a couple months. It's strange because I was trained as a commercial pilot and trained to function under severe stressful situations. Yes, I can fly a commercial airline under very demanding and stressful situations, but when it comes to Cancer, I have a real tough time dealing with it. Since I am into this for more than 5 1/2 years, I have taken on some people that have been newly diagnosed. I want to get back to the community, I feel it's my obligation. One of the fellows that I'm dealing with right now, he's only 50 years old and has a Gleeson nine or 10. We're still trying to figure that out. The PMAPET scan does not look good. He has been offered a trial called a., GUNS TRIAL , at UBC and Vancouver General Hospital. I had my operation at the Royal Columbia Hospital, just outside of Vancouver 5 1/2 years ago, that was about the same timeframe as when I was building my house on Vancouver Island. I am semi retired now on Vancouver Island and travel and work abroad for about five months out of the year, mostly in southern Europe and southeast Asia. I would likely to be based out of Manila, Clarke, Air Force Base, and Cebu this winter for about four months. I will update my profile 🙂 God Bless Sir ! James