← Return to CAR-T Cell Therapy: Introduce yourself and connect with others

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@pamcatl
Hi Pam This is my first post on this site. I had Car T Cell treatment on July 22 of this year
I just got my 3 months pet scan and no cancer is showing. I also had the exact same cancer you did and it was very advanced. This was my fourth time having non-hodgkins lymphoma It started when I was 48 went into remission for long time Over the past ten years has returned several times and the last treatment did not work. I am 71 now and I also was very hesitant about this treatment. I did have some side effects. I was only in the hospital for three days and then returned home. It took me till about three weeks ago , around the middle of October,
to really start feeling good enough to go for walks and cook and get out. I had pain, some nausea and few other discomforts, but one day I woke up and the side effects were gone and so far have stayed gone. My oncologist told me that she had heard this before by other patients. You do need someone you can count on to go through this therapy. I am holding on to the thought that I will remain in remission for a long while and hopefully be cured. I have granddaughters to watch get married and great grandbabies on the way. Lots of prayers to you and yours

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Replies to "@pamcatl Hi Pam This is my first post on this site. I had Car T Cell..."

@bangobingo Welcome to Mayo Connect, along with a congratulations on your CAR-T cell therapy! There are so many wonderfully positive stories from lymphoma patients receiving this treatment and yours is another! So thank you for sharing with the group! While the early days can be uncomfortable they are quickly forgotten when life returns to a level of certainty and normalcy again. Three months and you are now back up to speed! That’s fantastic. Sticking around to see your granddaughters get married and to see some cute little great grand-babies are strong motivators!

How frequently do you return for follow-ups with your oncologist?