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← Return to Erosive oral lichen planus
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Hello, @mrsdavis1 That all sounds so difficult! I’m so glad you found MayoClinicConnect. I’m a nurse and I agree, doctors don’t know everything. I read an article that said that they never learned about autoimmune disease because most are too new. Mine, included. Are you anywhere near the state university medical school? They have excellent doctors . One woman found a specialist dentist who diagnosed her. I sure hope you find something! Try large medical centers, medical schools, and rheumatologist. And look thru all the previous posts on OLP. Everyone has such good ideas. Be sure to let us know how you’re doing
Replies to "Hello, @mrsdavis1 That all sounds so difficult! I’m so glad you found MayoClinicConnect. I’m a nurse..."
Hello again I’m back with an update. So my OBGYN left to pursue her career elsewhere and I made an appointment with a new one because of the painful lesions on my vagina. After discussing the possibility of LP and my 10 year history of my vaginal issues and recent recurring oral ulcers, she did a biopsy. I ended up with an infection at the site a few days afterwards. However, now I’m just left with more questions and confusion because my biopsy results were normal. How could this area that always swells up with painful legions be “normal”!?! Plus the white skin areas on my brown body...sorry I’m African American. Then the constant oral ulcers among other things, I was sure I had LP. Then she says well if it’s bothering you then we can send you to a dermatologist to “remove the area!” I feel like I’m going crazy! It’s normal but let’s cut half of your labia off since it’s bothering you! The other issues well you can just deal with on your own. Of course she didn’t state it like my previous two sentences but in my mind that’s what I heard. In a totally unrelated situation...this is similar to what my dad has experienced. He had biopsies done on his forehead and scalp due to some significant skin changes yet every time they tell him it’s normal. It started out about the size of a pencil eraser but now he has two tangerine sized areas on both sides of his head that are getting worse daily. Again they ALWAYS tell him everything is just fine! I don’t know maybe we have some underlying genetic skin condition that hasn’t been figured out. I know that recently I found out that I DO carry some recessive mutated gene when they did my cancer screening. Maybe I should have a through genetic screening from head to toe, since they only screened for certain things. I’m sorry I’m rambling but I just have lots of questions now! 😔
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Most of my specialists are practicing in a university medical center I hadn’t brought this up to them yet. I started with my OBGYN and the dentist but I will definitely fill them in and see if I can get some answers and relief. Thank you and I’ll keep you updated.