It is for sure a very challenging and sometimes when we have the pain of ELP it brings that tearful frustration. It seems to be considered a hysterical women’s disease. There was an article published in the New York Times this month. Here is the link. https://www.nytimes.com/2019/05/12/well/live/a-little-known-skin-disease-that-can-disrupt-peoples-sex-lives.html. Information in this article could well be what ended my marriage. These rare auto immune problems seem to be a mystery even to the medical community. At least Mayo provides a forum to learn what may work. If it worked for others! If the link I provided is blocked just search for the New York Times article from 5/12/18 an article by Jane E Brody. Heading is A Little-known Skin Disease That Can Disrupt People’s Sex Lives. It is a provocative but true statement but so much more. People have been responding with their medical experiences. Good luck. maryz