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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 1 day ago | Replies (1937)Comment receiving replies
@blackie17
Tom, I am not feeling well. They just RX’d me a pancreatic enzyme replacement. I’m hoping this is a covered expense and is helpful.
I am taking the three drug combo through a port and I go home with a pump following the infusions
Replies to "@blackie17 Tom, I am not feeling well. They just RX’d me a pancreatic enzyme replacement. I’m..."
@blackie17
Sounds like Folfirinox - Oxaliplatin, Irinotecan and 5FU? The 5FU is the one you take home for 40 hours. You will feel pretty awful at the start and it does get better but very very slowly. Hang in there.
@blackie17 If it is any consolation, my husband who is on a 'modified' Folfox (3rd session) is having a really hard time - nausea, tummy upsets, no appetite, weight loss, fatigue.
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@blackie17 sorry to hear about that. I grew up in Philly, so I know your area pretty well. I have a different type of pancreatic cancer. But, others on here have experienced your diagnosis and treatment. I just want to ask a few more questions, so those folks can share their journeys. Ok? What are the three drugs in your three drug combo? What pancreatic enzyme were you prescribed?