Hello. I just finished taking prednisone 40 mg daily for 4 days (for a different issue) & my mouth has cleared up for the most part for now. Have you tried that? Do you have a primary care doctor who you can discuss this with or have already discussed the issue with? Or perhaps an oral surgeon? Maybe you could take some information in hand with you on steroids & treating OLP if you see a doctor. I have suffered for going on 5 years now with erosive LP. In the beginning I lost 30 lbs because I couldn’t eat much. Someone mentioned a few weeks ago on the post about calcium helping them so I’m currently trying that only because I remember last year starting on calcium & improving- but I attributed it to a soup/juice cleanse, chiropractor, etc. Looking back now, I see it could have possibly been the calcium. I have started back on calcium & am hoping this is part of an answer. But a large dose of steroids has helped me tremendously. It took this big dose for 4 days because I was on prednisone 2.5 mg daily for a year & it didn’t do anything. Neither did topical steroids applied topically in mouth. Hope this helps.

I have also used an Rx compound of lidocaine & dexamethasone that helped. It was ordered by my dentist & filled at a compounding pharmacy. My primary care doctor has also ordered plain viscous lidocaine for me to use topically. I put the liquid in an oral syringe (like for kids) so I can then just put a drop or 2 on the erosive lesions.

@ grammlyn OLP is treated with steroids, not always huge amounts. The right doc might be ENT or even dermatology. Try calling a medical school and get reference.