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Benign carcinoid tumor in bronchi tube
Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (617)Comment receiving replies
@tomrennie Yes. My GP referred me to one when the tumor began growing. I looked up all the doctors in that clinic and chose one. I not only did not get my choice, but I got the one I did NOT want to see. Portland healthcare is all messed up. Big problem now, is the continued pain, and the lack of cooperation with the surgeon's office to send in forms for my continuing to get any money. (based on return to work date) I have not received pay due me for about 2-3 months. I have to get back to work. It's just me myself and I. Plus, I have 3 more tumors they supposedly found post-surgery. Just disappointed and frustrated.
Replies to "@tomrennie Yes. My GP referred me to one when the tumor began growing. I looked up..."
@nannybb It has to be frustrating. Unfortunately, I am unaware of any solution. Weaving one's way through the healthcare maze can be a challenge. Living with pain can make it worse. All that I can suggest is to keep pounding on the required doors until you can get the help that you need. I am sorry that you have to go through this.
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@nannybb oh my word!!!! I am sending love during this difficult period. I do not know what comes next because I am not there yet but.., carcinoids are slow growing so do not make rushed decisions. There is time. Talk to a friend and find support and a real carcinoid doctor! Googled carcinoid lung cancer and find an expert.