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← Return to Erosive oral lichen planus
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I have oral like in planus following a stem cell transplant. Or use a combination of swish and spit dexamethasone (steroid) and Nystatin for yeast because the steroids can create yeast growth. Because I don’t swallow the steroid, I don’t get the impacts on my whole body, just my mouth. I also drink a lot of water all day. I find iced water keeps inflammation and pain down. It has all helped keep the lichen planus controlled and I don’t get so many erosive episodes. I rinse twice a day with the dexamethasone, up to four times when I have a flair. Or use the nystatin as needed when I get a used bloom. Hope this helps someone.
Replies to "I have oral like in planus following a stem cell transplant. Or use a combination of..."
@ckeys To whom it may concern: I have been reading about oral LP and burning mouth syndrome over months (years?) in many comments on this site. I can only conclude that there is no (satisfactory) treatment for these conditions, and certainly no cure. I also get the impression that doctors hardly know of these problems (which can be terrible) and cannot do anything. In a day when they do solve incredibly difficult problems deep inside the body, it is hard to believe that OLP and BMS, right there to be seen, have no solutions.
I am now also using a compounded prescription of viscous lidocaine & dexamethasone made by my compounding pharmacist sister. The flare up I was as having is controlled for now. Second day of no pain with eating. Put soup on hold for a few days. Good to get some relief. Still using coconut oil swishes. Melatonin has helped me in the past too by reducing stress & causing me to be calmer about things.
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What kind of stem cell transplant? Joints? Knees? or other type? Please reply!