← Return to Proton Beam Therapy Experience - what was your take?

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Profile picture for brianjarvis @brianjarvis

With only 46 active proton centers in the U.S. (https://www.proton-therapy.org/map/), much has to do with access.

Also, with recent studies (COMPPARE and and PARTIQoL) showing similar tumor control rates and patient-reported quality of life outcomes, insurance companies sometimes have an impact on that decision (given the cost of proton over photon).

Ultimately, it was proton’s Bragg-Peak characteristics that persuaded me (and the fact that Medicare fully covered it, and that there was a top proton center just a 40-minute drive from my home helped my decision immensely).

During April-May 2021, I had 28 fractions of proton radiation (2.5 Grays each session), with SpaceOAR Vue, and 6 months of Eligard (for a localized Gleason 4+3=7, Grade 3).

Short-term —> I only had 1 day of adverse side-effects during my 28 sessions of proton beam radiation treatments (during April-May 2021). On the 3rd day of treatment, I had urinary issues. My RO told me that with some men there’s an inflammatory response to the radiation, and if that inflammation is near the urethra can cause the issues that I was experiencing. He recommended that I take 2 Tamsulosin/day for the remainder of the treatments. Everything cleared up by the next day; I haven’t had any issues since.

Long-term —> My “recovery” from radiation treatments since then has been uneventful.

My experience? —> It was a walk in a park.

Dr. Rossi provides good information about proton in his portion of this 2023 Mid-Year PCRI presentation: https://www.youtube.com/live/WTqPnSRYtW4
—> Starting at timestamp 3:38:45.

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Replies to "With only 46 active proton centers in the U.S. (https://www.proton-therapy.org/map/), much has to do with access...."

@brianjarvis thank you for your feedback. I am doing a PERScan, waiting on results of decipher test and genetic test. Meeting with an RO. Urologist is a robotic surgeon so his bias is RP surgery with radiation as a backup for any reoccurrence. I have no symptoms. So the side effects are a factor for me. I’m taking a little time to gather data and opinions based on all my unique scores, tests, pathology reports etc. I just didn’t see many comments on Proton on this message board as most men do RP or radiation combines with hormone therapy. And there are many many successful outcomes for both. I pray you stab heat and thank you for your story.