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Erosive oral lichen planus

Autoimmune Diseases | Last Active: Jan 19 4:18pm | Replies (231)

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@cheryl5778

I was just recently diagnosed with oral lichen planus about 1 month ago. It is painful, but not overwhelming. Mostly just looking for other people with this condition to share stories with and hopefully one day share a cure with. I'm 44. So far, I've just been using a gentle toothbrush, Tom's toothpaste, no swishing just gently wash mouth with water and release. I also gently swish (hold, move around, and release not really swish) with Chlorhexidine mouthwash and that seems to help as do gently swishes with saliva substitute packs (Salivamax) overall keeping the oral mucosa clean and moist but not overstimulating the surface with friction. The specialist said it's about 10% erosive and the rest not erosive. For those who it turned in to cancer, was it immediately obvious somehow, or how did you know it had turned? The specialist gave me a steroid cream to use if the pain gets really bad, but I haven't used it yet. As another poster mentioned regarding NSAIDS, I've also used a lot of NSAIDs due to an unrelated condition and was recently tried on Sprix (nasal form of Toradol) and coincidentally (or not) that is when the lichen planus started (right after starting Sprix). So I try to minimize Advil, etc. as much as possible. My uncle had autoimmune diseases; rheumatoid arthritis and lupus and had to take treatment with Methotrexate-not sure if autoimmune disease would be genetically passed on (or a predisposition for). Happy New Year to all and look forward to hearing from everyone.

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Replies to "I was just recently diagnosed with oral lichen planus about 1 month ago. It is painful,..."

@cheryl5778 My lichen planus turned to cancer a few years after it had settled into one erosive lesion on the side of the tongue. Everyone thought it was standard OLP but looking back, I wonder if it was cancerous or precancerous all the time. It had been a long time since I had the lacy, stripy lichen planus. That one isolated and painful lesion should have been biopsied much sooner.
I don't know about NSAIDS but I do remember I associated them with a flare up and the development of thrush. I haven't had lichen planus since the cancer (11 years now) and NSAIDS don't seem to harm me at all.
Sounds as if you are doing an excellent job of looking after your mouth!