So sorry you are going through this @lima. I had oral lichen planus for many years and never found the trigger or a cure until it settled on a spot on my tongue causing a cancer. Once the cancer was removed, no more lichen planus. But your variety of this condition sounds awful. Can you go back to the effective dose of cyclosporine? I don't have any advice except to keep trying to find a medical team who can offer some better solutions. I remember when I was a chronic migraine sufferer two things helped. One was seeing a neurologist who was a migraine sufferer himself. Another was emailing the editor of a migraine newsletter who had good advice on how to keep the attacks under control using minimal medication. I do hope you find some good tips here on Mayo Connect.