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Tymlos blood pressure side effects etc. very nervous! Help…
I wanted to know if anyone has some info on these specific topics.
We are in a small town one Rheumatologist…has connections with Dartmouth, which isn’t bad.
1. 90/60 blood pressure (10-20% drop with Tymlos)
2. Can you start with smaller dosing first few days to start? He says no others say yes. Tymlos company rep says no, but I see others have said they did that.
3. Can you use Ibuprofen to raise low blood pressure?
4. Phenegran or Zofran for Nausea? What other meds since these can low BP also.
5. Calcium Vitamin supplement schedule?
6. How soon should a Blood test follow up be?
Any other experience with Tymlos would be helpful…supposed to start Thursday
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@normahorn I don’t doubt this at all, I’m sad to say.
@gently Well, let’s not tell them! 😂 to be quite honest, I thought the same. But from the anecdotes I’ve seen here, women are successful moving from a lesser dose to a greater one. It allows us to feel in “control,” and it seems to be working as far as bone density goes.
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1 Reaction@osteopatient2026 Try not to stress too much about it. I’m sure your doctor’s office will work with the new insurance. They’re used to having to do that. A word of advice, if I may: contact your doctor the first week of December to make sure they can submit the paperwork to the new insurance before month’s end, OR, to set it up so it goes I suggest this because a lot of docs are closed the last week or two of December, and there’ll be no panicked rushing on your behalf.
@beachesanddreams
Thank you excellent advice. So far I have just a headache I awoke with this morning I have Hyponutremia (low sodium) …will check BP again in an hour or less.
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2 Reactions@gently
I’m getting coffee now a little oatmeal with some salt added then ibuprofen…hopefully good after that. 🙂
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1 Reaction@mrg1
So far the BP drop I was worried about was minor it dropped about 5mm from 60 to 55 diastolic then came back up in about an hour.
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2 Reactions@beachesanddreams I couldn't tolerate the 80mg dose. I cut back to 60mg after the first 6 months, and an now nearing the end of the 2 year limit. I'm February we'll see if it was effective. I pray I haven't silently been losing none mass for 2 years! Of course, the options are limited.
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1 Reaction@susyt
What were your side effects you had a problem with? How long after starting Tymlos did they start? What were your tscores when or before you started?
I started having increased palpitations (I've had them for 30 years, no big deal) within a couple weeks, but the symptom I needed to address was exhaustion and weakness. I just couldn't keep up with my life, and felt so weak. Cutting back to 60mg did the trick (I still get lots of palpitations, they are harmless PVCs). My lumbar spine T-score was down to -3.6 and the doctor was quite concerned with that. I had just finished 5 years of risedronate, and although my hip score had improved, my spine had deteriorated considerably.
Getting this diagnosis with the warning "don't lift anything more than 20 lbs, don't fall, etc", has changed my life, in that I feel so fragile and am afraid of doing things I loved, like skating, skiing, even bicycling. I'm so afraid of falling, that I have changed my outlook on life activities, and not for the better. It's a bit depressing!
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1 Reaction@osteopatient2026
so glad to hear it wasn’t too bad. did you do anything to help with your BP? What time of day did you take it?
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