@jeffmarc thank you for providing this information. I’m doing a PETscan and waiting on decipher and genetic results. Everything is hurry up and wait. My urologist is a surgeon and honestly state he is biased to RP (with keeping radiation as a backup). I am meeting with a RO who is at a center that does both Photon and Proton. Each nugget of intel and other’s personal journey helps both emotionally and decision wise. I’m glad you had a fast recovery with little issues. Genetics are what they are. It seems you are dealing with any RO quite well. You must have an amazing positive attitude :). Thank you again for your time. I hope other men read these as it’s not something in my circle that’s talked about.

I thought it odd that an RO and a urologist at a top flight facility that had proton therapy in house would discourage its use for prostate patients, if all there is to it is cost or specific side effect profiles. Medicare and at least some insurance plans pay for protons.

I could see specialists telling their management that until there is a clear advantage shown for protons they don't see the point in spending the tens of millions of dollars to build such a facility to administer them. But once they've got protons in house, there must be some reason in their minds that they would discourage proton use for a particular cancer type. I didn't explore the issue as the appointments were short and there were more urgent things on my mind.