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Erosive oral lichen planus

Autoimmune Diseases | Last Active: Jan 19 4:18pm | Replies (231)

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@lisalucier

Hi, @elizabethbryant -- your oral lichen planus sounds painful and challenging with difficulties chewing your food. I'm sorry to hear that stress from a family emergency has caused a problem that had gotten a lot better to flare again.

I've moved your post here, because I thought that other members with any type of oral lichen planus would be of help to you and may have thoughts on what could provide relief.

Has your ENT had any suggestions for you on how to manage the painful talking and chewing you are experiencing, @elizabethbryant?

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Replies to "Hi, @elizabethbryant -- your oral lichen planus sounds painful and challenging with difficulties chewing your food...."

The most concern over the lichen planus is the right side under the tongue went into errosive lichen planus and then
stage one cancer and part of my tongue was removed. My ENT told me to go to natural remedies there is no cure.
Now the family emergency set the other under side of my tongue off with lichen planus. My ENT saw it and said
it will not go away. I have used steroids, which I believe have only thin the oral tissue in that area and caused bleeding
I must rid my body of acid to and stress to gain control over the situation. I was really doing great until the situation
hit my household. I understand Boston has some great doctors, but no one seems to know (medical) what to do
with this. Thank you anyone who can suggest something. I looked up Bethamethasone and it states no to use it inside
the mouth

Hi @elizabethbryant I had the same condition and the same result. Have not been aware of lichen planus since my cancer surgeries but remember how painful it used to be. The only relief was gained from steroids which have their own dangers. I hear what you are saying about stress bringing some of these horrible conditions to the fore and it's good that we can discuss something or anything that can relieve lichen planus.