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Erosive oral lichen planus

Autoimmune Diseases | Last Active: Nov 1 2:39pm | Replies (254)

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Profile picture for bjsday @bjsday

I understand your frustration and I'm sorry you have to deal with this. After four years of this pain, 12 doctors, 5 biopsies and a 40 pound weight loss the only relief I've found is don't eat anything hot or cold or that needs chewing, use kid's watermelon toothpaste and Motrin helps with my pain more than the prescription pain relievers. I've heard of people that have had this problem just go away. I will wish that for both of us. A few have found improvement with vitamin B12 and D. I'm going to give B12 a shot and have already started on D. If there is any improvement, I'll let you know. If anyone discovers a doctor in Michigan that that has any experience with this issue, please advise, and good luck to you.

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@bjsday
I use Dr. Bob toothpaste. Got mine from Amazon. It doesn't cause any pain or flares. No SLS in it.