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@germy2 Hi, I am so glad I found you. I have lichen planus and my teeth have started to ache.
Severe lichen planus should be looked at least every 3 months and biopsys done. It is alarming
the medical care that you have received, I will not consider Vanderbilt. My errosive lichen planus turned
into cancer. You must be biopsyed. I would suggest John Hopkins ENT or Boston Mass. Hosptial
Dr. Jermy Richmon. who performed my oral cancer surgery from errosive lichen planus.
I will see a speclist in oral issues next week recommended by Dr. Richmon. Ten hours by train. I will keep you posted.
I am not good at using this site and haven't found a lot of medical information. It is good that
we can share what we have found from various hospitals. Thank you so very much for sharing
I had considered Vanderbilt but now that is out. Thank you so very very much, this is how we
help. I hope I can help you after visiting a specialist in lichen planus. Eliz.
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Hi,
My name is Loli and my lichen planus developed into cancer. I had it in my cheek. I recommend you have a good dentist monitor yours; but as you might know, this is an immune system deficiency, so I recommend you work on your immune system. Start by checking your vitamin D. I have found that all of us who have had some kind of mouth cancer, also share a deficit in the vitamin D department. Find out everything you can about busting your immune system: diet, vitamins, etc. Not all lichen planus' turn into cancer. Only about one %. As far as confort for your mouth, I cannot share a lot, because my condition was never painful, but I know from other people, that it flairs from time to time, and that they have some periods that it calms down. Watch what you eat, and stay away from things that exacerbate it. It breaks my heart that you have to go through this. I have a picture of a 4 year old cancer girl in my desk. I look at it every day, and then I give thanks to God that that girl wasn't me, and I find ways to help others and help myself.
Love, Loli