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Endometrial cancer at a late age

Gynecologic Cancers | Last Active: Dec 3 7:06pm | Replies (67)

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Profile picture for alohman08 @alohman08

@greatgrandma2025 Good morning...I'm sorry that you are going through this journey it sucks at any age ! I am a very healthy 77 year old I'll be 78 in early January. Considered the the picture of goods health forever until....April of 2021 when I was diagnosed witb this rare aggressive cancer...total shock !!! But I'm very strong and a take care of kind of person so I fast tracked everything....The term aggressive really got me !! I questioned starting chemo as a preventive treatment even though my cancer was discovered very early at a stage 1A just a small spec in uterus...Surgeon said it was not necessary so I listened....when I had the recurrence is wasnt a question for me I want to live and if chemo was the best treatment I didn't think twice....I believed that I would tolerate it well because I am in excellent condition as a result of living a very healthy lifestyle for many many years....lots of exercise plant based diet with addition of fish great sleep ( just lucky ). also fabulous loving family and friends. All this being said I was not very apprehensive about being treated with chemo...I just wanted to kill the cancer and it did and other than losing my hair which wasn't pleasant, but I had a great wig that no one was a wig ! I had pretty normal energy no nausea not much appetitie I lost 15 lbs which I gained back quickly when chemo ended. I have heard that many people have a hard time wiht side effects but I have also spoken to people who like me ...tolerated it well. Obviously your decision, If you trust your doctors and of course you want to live it may the only option to prolong your life. Why are they suggesting chemo if your scans are good ? That sounds odd to me...What kind of uterine cancer do you have ? is it Sereus carcinoma, sarcoma ? I didn't have chemo until my recurrence...18 months after having had perfect scans clear MRI. go figure ?? I wish you luck and strength and getting over your nasty infection?! 80 years old is NOT old in my opinion...I plan to live into my 90's I want to be around to watch my 4 grandkids grow up !

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Replies to "@greatgrandma2025 Good morning...I'm sorry that you are going through this journey it sucks at any age..."

@alohman08 Thank you for the kind words and will keep you in my prayers. I am learning so much. I was diagnosed in June 2025 with High grade Serous Endometrial Adenocarcinoma. July 9, 2025I had a complete hysterectomy robotically. They staged it as lllC2. Had a CT Scan in August with a CA125 of 3.1. November 1, CT scan was CA125 of2.8 everything normal with no metastases found. So I have decided to wait another three months to get thru the holidays. They told me they felt they got it all with surgery but want to make sure with 6 chemo treats followed by 5 weeks of radiation. Several people have said if there is no cancer or indication way do chemo and radiation as that is aggressive in itself. I feel pressured by chemo and especially by radiation doctors which makes me wonder if they did get it all or if something happened during surgery. I also had a incident with the radiation doctor that also was pressure. I don't want to make waves with that doctor as he may be administering my radiation if I decide to do it. But my consultation was more than that as they insert markers in my cervex without me understanding what they were doing. Any input you can give is helpful, Several terms I don't understand p3mutated and HER2 2+ a lot more but will start with these. I need to fully understand these terms. Thank you for replying.