← Return to My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

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Profile picture for mamaof6monsters @mamaof6monsters

I am so happy for you for the amazing humans who have made it to transplant and survived to share with us ! My 31 year old son was just diagnosed 10/3/25 with AML we eventually got worse news that he has AMoL and has a mutation KMT2A rearrangements . He was first diagnosed and treated at Unity Point IA Methodist hospital in Des Moines IA treated there then sent to mayo . This is scary it seems like every step forward it’s one or two steps back! He’s at mayo in remission getting HIDAC chemo and targeted drugs for his mutation until we can find him a stem bone marrow donor. Congratulations like to read the positive outcomes so i can concentrate on him and not worry every second of every day

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Replies to "I am so happy for you for the amazing humans who have made it to transplant..."

@mamaof6monsters, Welcome to Mayo Clinic Connect. My heart goes out to you because I know what a helluva ride this is for your son and all of you! But he’s in the best possible hands right there Mayo-Rochester. I know so many of the doctors and staff there and they’re all outstanding. Of course, I’m a bit biased having been given my own 2nd chance of life there, but it is truly a place for hope.

Out of the many bits of wisdom I took away from my experience, one stuck in my mind when my doctor said to the effect, “Let me do the worrying for you so you don’t have to focus on anything other than healing. That’s what I’m here for.” I know I gave my doctor some sleepless nights but his level of knowledge and assuredness allowed me to sleep without worry. I hope you’re able to have that level peace with your son. ☺️
There’s another member from Des Moines at Mayo right now going through a similar journey with her husband. @justjoan11. Her husband has AML with several mutations. Might be nice for you two to ‘connect’ on some level.

Please let me know if there’s anything I can do for you. Do you have any questions about the upcoming BMT?
And I have to ask…your @name. Momma of 6 monsters…what’s that story?? 😂

Hi @mamaof6monsters. I wanted to follow-up with you to see how your son is doing with his treatments for AML. You mentioned being at Mayo-Rochester so from my own experience there, I know he’s in exceptional care.

I wondered if you’d seen this reply to your original message:
https://connect.mayoclinic.org/comment/1437501/
I’m here, along with many other members who have walked along the same AML/BMT path to offer encouragement and hope. So please don’t hesitate to ask questions or share concerns.
Has there been any news of a donor match yet for your son?

Just checking in, @mamaof6monsters. How is your son doing? How are YOU doing?