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What is Life like after Bladder Removal?

Bladder Cancer | Last Active: Dec 18 11:17am | Replies (59)

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Profile picture for daddyroxx2025 @daddyroxx2025

@bajaman New to this All, I've had my First Surgery to Remove the Tumor, Which was Cancerious,
Now, this Monday I go in again for more Exploring ( I Guess )....I dont know what to do, I'm Confused about it All,..at 62 and live by myself,...My Doctor told me the Bladder and Prostate are a Good Possibility to Be Removed...I am Devastated by this All....I dont know how to handle any of this...
Rerouting my Urine System and have the Bag is just blowing me Away....I dont know what to do with this issue....Please Help.

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Replies to "@bajaman New to this All, I've had my First Surgery to Remove the Tumor, Which was..."

@daddyroxx2025
Okay let's calm down and take a breath. I'm going to tell you that I am two and a half years now with a neo bladder and I don't really think about it's too much because I am operating more or less the way I was before the operation. I did not get a bag but I know people that are using a bag and they have adjusted. This is not a death sentence my friend but some adjustments are necessary. My doctor at Mayo told me that I probably also have to get my bladder removed or otherwise have ongoing BSG treatments and be continuously worried about whether the tumor would reappear. He said that getting up near bladder was "the definitive solution". I am continuously tested and I am officially in remission. My only real inconvenience or problem now is night time incontinence but I can live with that. I still need to wear a diaper at night. But otherwise life goes on and I'm not compromised much. After 2 years I was able to enjoy sex again and otherwise lead a normal life except for the incontinence issues which really now are only a night time problem. The issue here if you are stage 2 which is that is what it says in your profile you are at the point where you might want to consider bladder removal. (I also had my prostate gland removed at the same time avoiding again another future problem in my opinion). I'm trying to tell you here is that you won't notice much any change in your day-to-day feelings about your intestinal area as you won't notice much difference having a neo bladder versus your original bladder. I think obviously the main point is to minimize the chance for cancer recurrence in some other organ in the body which may not be so easy to remove. The surgeons are magicians these days and I can't even tell where my penetration was in my bowel as I have no visible scar. I know the operation sounds scary and I have to say there is a long recovery period afterwards but in the end you can kind of go back to your normal life. So take heart my friend, this is survivable and I recommend you seriously consider complete bladder removal especially if it is recommended by your doctor.