← Return to Afraid of upcoming Bilateral Mastectomy and Reconstruction

Discussion
Comment receiving replies
Profile picture for jodyvick @jodyvick

Look up 'flat denial' - I also had double mastectomy to avoid having to have chemo/radiation afterward. I didnt want breast implants - the print material they give you shows that they have something like a 60% failure rate, I legit don't know why doctors recommend them. I wanted something more natural with my own tissue but was told those procedures don't exist... (Didnt find a second opion until it was too late!). I let them talk me into immediate reconstruction and my body never healed over them. They needed to be removed, and now I can never have the more natural, smoother outcome that I'd wanted anyway because of all the scar tissue around where the implants were put in. That's hard, uncomfortable, asymmetrical... I regret trying implants at all and feel very strongly that it was the ignorance of my provider team that guided me poorly. I don't think there's many 'good' post-mastectomy outcomes, besides not having breast tissue for cancer to feed, that is! If you look up 'flat denial', you can find some links that help you ask these questions to your medical team that could produce a third option for you - things like "Tissue rearrangement... fat transfer, mindfulness toward scarring, nipple-sparring, preventing concavity'... see what they say about those things, maybe they will be less ignorant than mine were!

Jump to this post


Replies to "Look up 'flat denial' - I also had double mastectomy to avoid having to have chemo/radiation..."

@jodyvick
If you are interested in coming to Dallas, TX you may want to get in touch with an extraordinary plastic surgeon.
Dr. Gregg Anigian.
Perhaps call, discuss and send pics for consultation.
He did a phenomenal job on my friend for her breasts and he was terrific when my husband needed plastic surgery for his Ehlers Danlos. He did an extraordinary job on him, too.
Heres the bad news: he does not file insurance. You will need to do that and I believe pay a portion up front.
A phone call will cost you nothing but time.

He IS a caring dr and discusses what he can do for You.
He called me on the phone right after he did my husbands face to tell me how it went, how he was doing etc.
Best investment we made for my husband and my friend made for her breast reconstruction.

You may have a top plastic surgeon in your area, too.
Best and Blessings!