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Tymlos blood pressure side effects etc. very nervous! Help…
I wanted to know if anyone has some info on these specific topics.
We are in a small town one Rheumatologist…has connections with Dartmouth, which isn’t bad.
1. 90/60 blood pressure (10-20% drop with Tymlos)
2. Can you start with smaller dosing first few days to start? He says no others say yes. Tymlos company rep says no, but I see others have said they did that.
3. Can you use Ibuprofen to raise low blood pressure?
4. Phenegran or Zofran for Nausea? What other meds since these can low BP also.
5. Calcium Vitamin supplement schedule?
6. How soon should a Blood test follow up be?
Any other experience with Tymlos would be helpful…supposed to start Thursday
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@osteopatient2026 the clinical trials indicated significant drop in 1%, none result in emergency, but risking dizziness and falling.
I haven't read any in patient reports of hospitalization, except one person who hand an allergic reaction to the preservative in Tymlos.
Do you have a home bp cuff. In your situation I'd go four clicks and measure the drop.
Your blood pressure might be elevated now with all this last minute scare.
Really so your diastolic drops to 38…wow…I would think you would be unconscious. I start tomorrow with a Tymlos Clinician…
Will keep everyone posted on my first experience with Tymlos.
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1 Reaction@gently
Because of some bone loss in my lower 3 front teeth (not visible without X-ray) I have to use caution to not use a drug that won’t allow treatment of the teeth if I needed it. Tymlos doesn’t have any issues there. It’s after wards 18-24 months I will have to be careful.
@gently
Thank you…what part of the world are you in? I am in northeast
@osteopatient2026, I'd heard that Tymlos rebuilds jawbone. I'm taking Forteo which is very similar. The dentist I see remarked that dental x-rays comparing last year and this year indicated thickening bone. He was unfamiliar with Forteo.
I think this will happen for you with Tymlos maybe faster.
The danger for you would be after stopping Tymlos?
I'm in California in the middle of the state 218 miles to LA 186 miles to SF.
We're expecting an atmospheric river.
@gently
Use to live in Carmel area…and at one time…near Suisun….lots of other places…Orange County.
Hard to get much medical care where I am at …thx for your input.
osteopatient2026,
well, you get around. I usually go north or south for medical care. My cardiologist is at Stanford. My general practitioner at USC. The endocrinologis here beats all. He's just a dream. I'm happiest in warm weather.
@osteopatient2026 Sending you my best today. 🌺 I’ve read here that women do experience success and relief by titrating down if the side effects become too uncomfortable, as well as starting at a low dose and titrating up as side effects are better tolerated.
It just makes perfect sense to me to give those parathyroid glands a gentle nudge by starting low and moving up as your body adjusts.
Why put the meds in a titrating pen if we can’t do that?
Personally, I think there’d be a higher rate of success if we were able to maintain control over the dosage, so long as we commit to getting to the 80 mg dose for optimum results. We all WANT the medicine to work, for heaven’s sake, right?
If no study has been done on titration, I’d honestly wonder why (though we’re smart cookies. We know why.)
Osteoporosis treatment seems to fall into the "one-size-fits all" category. It is a battle to get lower dose ReClast and patients often have to take matters in hand to adjust the dosage of Tymlos.
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2 Reactions@beachesanddreams, I'd bet they'd change the pen if they ever found out patients are titrating.
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