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Endometrial cancer at a late age

Gynecologic Cancers | Last Active: Dec 3 7:06pm | Replies (67)

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@alohman08 Do you mind sharing what your CA125 was at the time you were first diagnosed?

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Replies to "@alohman08 Do you mind sharing what your CA125 was at the time you were first diagnosed?"

@inquirer you can ask my anything about my journey .. I'm an open book and hope that by sharing my story it will help others .. my CA125 was 10 when I was diagnosed and had surgery. Although I was seen regularly by the radiologist at MSK .. my CA125 was never tested .. when I complained about feeling bloated i was told classic IBS by my gastroenterologist.. after 5 weeks I went to local emergency room bc I knew they would do CT scan immediately and they did .. CA125 was 400 and I started chemo 6 days later. After 6 treatments CA125 was in normal range and stayed around 15,16 until summer 2024 went up to 46 by November 2024 .. scan showed very early node involvement next scan in April CA125 was 77 told still early could hold off on treatment until end of summer .. I decided to start in May and CA125 went from 77 to 43 after one treatment and has been 15 ever since ! I had a treatment today and discussed cutting dosage to lessen side effects which aren't awful just unpleasant especially thinning of hair !