I am looking for others diagnosed with microscopic colitis

Posted by Kristi Motch @kristimotch, Jun 1, 2012

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

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rebe410 | @rebe410 | Nov 11 5:37pm

In reply to @janstur "@rebe410 That's so interesting because mine started after my hysterectomy." + (show)

@janstur

Stress is a giant trigger and guessing that's how we all started. The stress of a major surgery!

janstur | @janstur | Nov 12 9:17am

In reply to @ndough "@rebe410 Oh yes, I know all about fat intake! Even though I’ve had MC for over..." + (show)

@ndough People say watch your fat intake but I am way underweight. It's a Catch-22!

janstur | @janstur | Nov 12 9:19am

In reply to @rebe410 "@janstur Stress is a giant trigger and guessing that's how we all started. The stress of..." + (show)

@rebe410
So true!

ndough | @ndough | Nov 12 10:12am

In reply to @janstur "@ndough People say watch your fat intake but I am way underweight. It's a Catch-22!" + (show)

@janstur but it doesn’t take much. And it’s also the kind of fat you consume. There’s a huge difference between olive oil (which is good for you) and vegetable oil (not). Read labels. Unsaturated fats are good for you, saturated not. However, your gallbladder is the “control valve”, so to speak, from your liver that releases appropriate amounts of fat into your system. Without it, well…. I’ve always been underweight until they removed my gallbladder!

ndough | @ndough | Nov 12 10:14am

In reply to @rebe410 "@janstur Stress is a giant trigger and guessing that's how we all started. The stress of..." + (show)

@rebe410 The original stress for me was heat stress! Makes sense, it’s the biggest stressor on your body. And my flare ups would occur like clockwork at the beginning of each summer (I live in Texas).

ndough | @ndough | Nov 12 10:20am

In reply to @nycmusic "@janstur there must be an alternative, less harsh…I sympathize because I, too want to keep playing..." + (show)

@nycmusic Thank you so much for the encouragement, however I’m in my 70’s now and OA has pretty much taken over my hands anyway. I’m afraid my days of playing are done.

janstur | @janstur | Nov 12 10:36am

I wish we could have a group in person, but I'm all the way in Reno, NV.

lighthouseceliac | @lighthouseceliac | Nov 12 10:46am

I have lymphocytic colitis and Celiac Sprue. I was used to most of the symptoms but not the severity. It took many months to get diagnosed and treated. What has worked for me is Colestipol and or Cholestamine.
I don’t do any caffeine anything (coffee tea chocolate) no sugar or sweeteners and only healthy oils.
It can be tricky but after 3+ years I have periods of remission. Taking good pro and prebiotics and a good multivitamin is essential.
I don’t do Imodium or pepto at all…too many side effects (migraines mostly). AIP way of eating helps so much. (Urban AIP…life saver!)
Find a good gastroenterologist and find what works for you and your unique body. It doesn’t have to ruin your life although it seems like it at times. Know when to say “no can’t do that, I am just not up to it”…rest when you need to. HYDRATION and STRESS reduction are a must. It is doable!!! Sending love from this Grammy….

nycmusic | @nycmusic | Nov 12 10:59am

In reply to @ndough "@nycmusic Thank you so much for the encouragement, however I’m in my 70’s now and OA..." + (show)

@ndough hugs ! enjoy listening in any way you can find.

ndough | @ndough | Nov 12 11:48am

In reply to @janstur "I wish we could have a group in person, but I'm all the way in Reno,..." + (show)

@janstur And that’d just one more problem with mc….when it’s out of remission (mine is), travel is going to another room in the house that does not contain a toilet.