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Diagnosis Frustrated: How you were diagnosed with NETs?
Neuroendocrine Tumors (NETs) | Last Active: Dec 4 11:54pm | Replies (37)Comment receiving replies
They found myNET tumor in the small intestine after numerous endoscopies also. It was finally an endoscopy with ultrasound where the doctor found and biopsied my tumor and two lymph nodes. Apparently there is a part of the small intestine that they cannot reach with endoscopy or colonoscopy.
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@djchambers
My Daughter has been newly diagnosed with NRT. Her tumor was found when her gastroenterologist decided to search a bit more after precancer cells were found in a previous colonoscopy a few years prior. She had gone in for a routine colonoscopy at age 45. Last week she had surgery to remove the tumor. She will meet with her doctor for treatment planning next week. We are looking for first hand experiences to know what to expect going forward. So far everything I've read in these forums has been helpful. Thank you all.