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DiscussionCan a recast infusion affect EDS?
Osteoporosis & Bone Health | Last Active: Nov 11, 2025 | Replies (7)Comment receiving replies
Replies to "Hello @annettam, you may find the following information helpful, https://www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome/care-at-mayo-clinic/mac-20362179."
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@JustinMcClanahan
Thank you we have seen this and looked into making an appointment.
I was rather disappointed when I called to inquire about an appointment in Jacksonville. They suggested that this would be primarily diagnostic and were not encouraging that she would be getting a plan to share with her providers near home. We had hoped that getting sort of a protocol from Mayo would be credible and actionable for opening communications with the doctors who are uncomfortable even seeing or treating her, challenging her pain complaints, and PT recommending inappropriate exercises.