To all those who follow this mom's journey with my 49 yr old , nonverbal, profound autistic with epilepsy. ..
Year ago, after 4 hospitalizations and a sigmoidectomy after changing from Zonisamide( 25# wt gain in year) on Lamictal XR my daughter is still having distention in abdomen, no stools for 3 days and needs Miralax ( 1x day)and Lactulose( 3x day) to produce stools and now once again manic, confused..
Ammonia level, lamotrigine okay, but we get to point of almost calling 911 as she doesn't urinate for hours..
Had CT scan and after ER last week, ER DR consulted with g. i. and deemed only thing to do was use RX laxatives
Her long time use of Seroquel will be addressed by cardio as she was borderline for qt syndrome and Seroquel not drug of choice IF qt present on ekg( next week)
Wondering if it's the seizure med, antipsychotic, or?? She is so complex now and menopause a concern, almost 50,on progestin only as estrogen stopped due to high BP, now bp very low. But new HRT guidelines out,yikes!
I don't know how to copy this to neuro, gastro, women's health on Mayo site but I need a team of lots of opinions to get this daughter through day to day now..
Water, high fiber, some exercise in play but because of disability some things hard to implement
THANK YOU ALL
Ps Chris, can you copy for me?
Lisa's mom, Maureen thanks everyone!