Neuropathy and Waldström

Posted by ageeth @ageeth, 19 hours ago

Hello all!
Are there people out here who have Waldström cancer and as one of the symptoms neuropathy?
They proposed a chemo/immune therapy know to treat the NP in my feet.
I hope to find someone who has experience with this!

Ageeth Herder

Interested in more discussions like this? Go to the Neuropathy Support Group.

My situation is not exactly the same, but maybe analogous. I have Essential Thrombocyyhemia, my bone marrow makes too many platelets. It can lead to Waldenstroms in some cases if not treated. I have a neuropathy that involves numb extremities. I have started cytoreduction treatment with hydroxy urea. It took about 6 - 7 months, but my neuropathy is now much better. My platelets are also in a normal range. So treatment to improve your blood counts might help alleviate your Waldenstroms.

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