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Replies to "@jfh1970 Thank you so much. I’m just wondering why they are recommending that I do the..."
Head & Neck Cancer | Last Active: 5 hours ago | Replies (60)
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@jfh1970
Thank you so much. I’m just wondering why they are recommending that I do the surgery maybe it’s because I have two lymph nodes already affected. I don’t know. I think I’m going to schedule a multidisciplinary consult and see if they can help me decide on what’s really best for me. I’m just deathly afraid of losing the ability to hold my grandbabies and I have three of them under two years old. I have 10 in total and they all come for hugs and want me to pick them up and do things with them and I don’t wanna lose that ability.
Replies to "@jfh1970 Thank you so much. I’m just wondering why they are recommending that I do the..."
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@justwow The Mayo team believed the metastasis to my left lymph nodes were too extensive to risk surgery. Plus most surgeries end up needing radiation chemotherapy anyway. HPV+ SCC is very susceptible to radiation.
Ask the team if their institution is participating in the DART 2.0 trial, which tracks the DNA marker of the cancer cell death. Mine dropped to zero by week 4 and I was able to stop a week later (two weeks early - meaning fewer and less severe side effects).