I turned 60 next month was diagnosed in February with a family inherited TP 53 mutation and through that they did body scans and found no cancer, but they found the dilated aorta which on MRI measured 4.7 and the CT last week measured to 5.0 they can’t tell me whether it was already a five or how long it’s been like this, nor how fast it will change. I’m at the stage of trying to absorb it this week and trying to find reputable surgeons. Hoping to get into the Mayo Clinic otherwise Duke or San or Institute here in North Carolina.
I saw someone I was referred to last week and he’s got horrible reviews and no warm fuzzy but I did follow through as I was guided too. He said I’m not a walking time bomb but borderline for where they intervene. He said it’s already leaking. But I also have a platelet issue and they’re going to do another bone marrow biopsy to again rollout leukemia and try to find the cause for a dropping from 80 to 60 this year.

No medication’s for anything never been diagnosed with anything really. I’ve always been fairly active. Ran a bunch of half marathons to full marathons, but I always had trouble breathing. Could never swim long distances. I would run out of air. 5foot 5 138lbs.
I have always had anxiety though making everybody else happy and getting things done.
It’s really freaking me out. I suddenly have to change everything and some decisions and goals in life for a suddenly taken away from me. Found this thread because I bought a vibration machine for lymphatic drainage, etc. and it came yesterday and I had the thought to look. Can I use this? And the answer is no.

Still working, but I’m wondering if I have 10 years left to live do I just pack everything up and move to the West Coast to be by my daughters or will I be more of a burden. We’re in my community. There is plenty of people who would do anything for me. Any comments on community or packing it all up and moving somewhere decisions? Even thought about going overseas after a surgery, which is not yet scheduled.